"Change Isn't Exactly Easy": Autistic University Students' Lived Learning Experiences During the COVID-19 Pandemic

Background: The COVID-19 (coronavirus disease 2019) pandemic-related isolation measures caused significant unexpected changes in learning experiences for all university students, including autistic students. So far, there has been a lack of information on autistic university students' lived learning experiences caused by the changes in the teaching delivery formats from face-to-face to online during this time. Our study addressed this gap by investigating eight autistic students' reported learning experiences during the rapid changes caused by the pandemic and discussing student-advocated learning supports.Methods: The participants in this qualitative study were eight formally or self-diagnosed, English-speaking, autistic undergraduate and graduate university students from a mid-sized Canadian university. Participants took part in semi-structured interviews that focused on their learning experiences and preferences before and during the pandemic, including what supports they found helpful. To analyze and interpret the data, autistic and nonautistic researchers used reflexive thematic analysis and a consultative participatory approach.Results: Our findings suggest that individual (i.e., organizational skills;mental health), interactional (i.e., prior experiences interacting with instructors and teaching assistants), and environmental (i.e., sensory environments, class sizes, virtual learning environments) factors, which were interrelated, determined the nature and quality of these autistic students' learning experiences and their academic preferences during the pandemic. We also found that each autistic student reported unique learning experiences and needed individualized supports for their learning.Conclusions: Several interrelated factors (individual, interactional, and environmental) affected the nature and quality of autistic university students' experiences during the pandemic. Each student had unique experiences and needed individualized supports. Community brief What was the purpose of this study?During the COVID-19 pandemic, all university students experienced rapid unexpected changes in teaching and learning formats when they had to switch from face-to-face learning to online platforms. There is almost no published information on autistic students' learning experiences during the pandemic. The purpose of this study was to understand eight autistic university students' reported lived learning experiences during the COVID-19 pandemic and to discover potential academic supports that the students identified. What did the researchers do?We interviewed eight Canadian autistic university students (five undergraduates and three graduates) about their lived academic experiences before and during the pandemic, focusing on their experiences with changes from face-to-face to online learning. We also asked them about effective academic supports that universities could provide. Autistic and nonautistic researchers worked together to analyze the participants' responses. What were the findings of the study?The study found that individual, interactional, and environmental factors combined to affect these university autistic students' lived learning experiences and their preferences for either online or in-person learning. Specifically, first, we found that each student's ability to study independently in an organized way and their personal mental health concerns such as anxiety management were key in deciding their learning preferences. Second, each student's prior success in socially interacting with instructors and teaching assistants was important in their preferences for online or in-person learning. Third, each student's sensory experiences on campus and at home including factors such as having to attend large noisy classes or the availability of quiet home-based learning environments were important. We also found that each autistic student experienced learning uniquely and required individualized supports. In this study, the three graduate students reported wanting to return to in-person learning as soon as possible, whereas most undergraduate students preferred online learning. What are the potential weaknesses in the study?We were not able to recruit as many or as diverse a group of students as we would have liked. Additionally, although autistic co-researchers took part in the coding, analysis, and writing of this study, they did not contribute to the earlier design or data collection. In the future, we plan to fully involve autistic co-researchers from the start to ensure we produce research that addresses the expressed needs of autistic people. How do these findings help autistic adults?This study provided evidence of eight autistic university students' lived learning experiences and preferences during the pandemic and described supports that the students indicated were important in helping them learn effectively at university. How do these findings advance the literature?This small-scale study provided early evidence about these autistic university students' preferences for online or in-person learning and the reasons for these preferences. These findings can be used to expand this study to include a greater number and diversity of students to investigate how other factors such as race, economic status, presence of co-occurring conditions (e.g., learning disabilities), and others may also influence autistic university students' learning preferences.

Now that everyone else has panicked, well horizontal ellipsis I have to panic: regulatory focus predicts panic buying during COVID-19

PurposeThe purpose of this paper was to identify social and behavioral factors responsible for panic buying during global pandemics such as COVID-19. Design/methodology/approachAccording to regulatory focus theory, behavior of individuals is regulated by two motivational systems - prevention and promotion. Prevention-focused behavior is motivated by security and safety needs and is associated with a strategic preference for vigilant means of goal pursuit. Prevention-focused vigilance is reflected in unwillingness to take risks and low ability to cope with uncertain environments and changing conditions. Promotion-focused behavior is motivated by growth and self-development needs and is associated with a strategic preference for eager means of goal pursuit. Promotion-focused eagerness is reflected in willingness to take risks and high ability to cope with uncertainty and change. Two studies tested the notion that panic buying during public health crises such as COVID-19 is related to the strength of the prevention system, perceived scarcity of products, perceived threat of the disease, age and gender. FindingsStudy 1 showed that the higher the perceived scarcity of products, the higher was the probability that panic buying would set in. Yet, different patterns emerged for men and women. Among women, the stronger the prevention focus, the stronger was the effect. Among men, by contrast, the stronger the prevention focus, the weaker was the effect. Study 2 showed that the higher the perceived threat of the disease, the higher was the probability that panic buying would occur. However, different patterns were observed with age. Among older adults, the stronger the prevention focus, the stronger was the effect. Among young adults, by contrast, the stronger the prevention focus, the weaker was the effect. Research limitations/implicationsImplications to address erratic consumer behavior during future pandemics are discussed. Originality/valueBy applying the theory of regulatory focus to consumer marketing, this research helps to identify marketing strategies to manage panic buying and develop contingency plans that address erratic consumer behavior during future pandemics.

Work-Family Balance among University Employees Having Children Aged 11 or Less in the Context of the COVID-19 Pandemic

Research Framework: Although all Quebec residents have been affected by the COVID-19 pandemic and by the health and social measures put in place since March 2020, working parents have been particularly affected by the various stressors caused by this crisis, in both their family and professional life. In such a context, it seems relevant to examine the consequences of the pandemic on work-family balance, and more specifically on the factors associated with it. Objectives: The purpose of this study is to document the personal, family and work characteristics associated with work-family balance among university employees with children aged 11 or younger in the context of the pandemic. Methodology: The data used for this study were collected between April 24 and June 5, 2020, through an online survey. A total of 217 staff members from ten institutions of the Quebec University Network completed the survey, which included questions related to work-family balance. Multiple linear regressions were used to determine the respective influence of factors associated with the work-family balance. Results: Overall, this study shows that university employees having children aged 11 or younger present a majority of moderate to high work-family conflict in the context of the pandemic. It also highlights some of the factors that may help or hinder work-family balance in this population of parents, namely level of parenting strain, satisfaction with sharing childcare and parenting duties, job category, stability of job performance, and number of young school-aged children. Conclusions: These findings underscore the importance of implementing work and family support programs and respite measures for parents with young school-aged children to help them balance their family and work responsibilities in times of crisis. Contribution: Although some studies have documented factors associated with work-family balance in times of pandemic, they remain few and only one has been conducted in the Quebec context. Work-family balance is likely to be experienced differently in Quebec, which is different from other countries in terms of its family policy. In addition, this study is the first to look at university employees, a group of workers who were among the first to be affected by the school closures in the spring of 2020. © 2022 Centre - Urbanisation Culture Societe de l'INRS. All rights reserved.

Now that everyone else has panicked, well… I have to panic: regulatory focus predicts panic buying during COVID-19

Purpose: The purpose of this paper was to identify social and behavioral factors responsible for panic buying during global pandemics such as COVID-19. Design/methodology/approach: According to regulatory focus theory, behavior of individuals is regulated by two motivational systems – prevention and promotion. Prevention-focused behavior is motivated by security and safety needs and is associated with a strategic preference for vigilant means of goal pursuit. Prevention-focused vigilance is reflected in unwillingness to take risks and low ability to cope with uncertain environments and changing conditions. Promotion-focused behavior is motivated by growth and self-development needs and is associated with a strategic preference for eager means of goal pursuit. Promotion-focused eagerness is reflected in willingness to take risks and high ability to cope with uncertainty and change. Two studies tested the notion that panic buying during public health crises such as COVID-19 is related to the strength of the prevention system, perceived scarcity of products, perceived threat of the disease, age and gender. Findings: Study 1 showed that the higher the perceived scarcity of products, the higher was the probability that panic buying would set in. Yet, different patterns emerged for men and women. Among women, the stronger the prevention focus, the stronger was the effect. Among men, by contrast, the stronger the prevention focus, the weaker was the effect. Study 2 showed that the higher the perceived threat of the disease, the higher was the probability that panic buying would occur. However, different patterns were observed with age. Among older adults, the stronger the prevention focus, the stronger was the effect. Among young adults, by contrast, the stronger the prevention focus, the weaker was the effect. Research limitations/implications: Implications to address erratic consumer behavior during future pandemics are discussed. Originality/value: By applying the theory of regulatory focus to consumer marketing, this research helps to identify marketing strategies to manage panic buying and develop contingency plans that address erratic consumer behavior during future pandemics. © 2023, Emerald Publishing Limited.

A longitudinal study of capability-based quality of life and mental health in the first 5-months of lockdown restrictions in the UK.

BACKGROUND: COVID19, and associated lockdown restrictions, have impacted on people's daily lives. Understanding the mental health and wellbeing implications of these impacts has been identified as a public health research priority. AIMS: Building on an earlier cross-sectional study, the current study sought to investigate whether capability-based quality of life changed during the first 5-months of lock-down restrictions in the UK, and whether capability-based quality of life was predictive of future levels of depression and anxiety. METHODS: An initial convenience sample of 594 participants were followed up at three different timepoints spanning a 20-week time-period between March 2020 and August 2020. Participants provided demographic information and completed the Oxford Capabilities Questionnaire - Mental Health (OxCAP-MH), and the Hospital Anxiety and Depression Scale (HADS). RESULTS: The mean scores indicated that levels of both depression and anxiety decreased across the three timepoints, whereas capability-based QoL (as assessed by the OxCAP-MH) decreased over time. Capability-based QoL predicted additional levels of variance in both depression and anxiety levels when time and sociodemographic factors were controlled for. Cross-lagged panel model analyses indicated that capability-based QoL over a month into lockdown restrictions predicted levels of depression and anxiety 5 months into the restrictions. CONCLUSIONS: The study findings suggest that the capability-limiting impact of public health emergencies and related lockdown restrictions are important for understanding peoples' levels of depression and anxiety. The implications that the findings have for the provision of support in the context of public health emergencies and associated restrictions are discussed.

COVID-19 and its prevention in internally displaced person (IDP) camps in Somalia: impact on livelihood, food security and mental health.

BACKGROUND: Somalia has over 2.6 million internally displaced people (IDP) that depend on daily wages and humanitarian assistance for their livelihoods. This study investigated the impact of COVID-19 on livelihoods, food security and mental health of Somalia's IDPs. METHODS: A questionnaire was conducted with "breadwinners" (n = 585) residing in 15 randomly selected IDP camps. Mental health was assessed using the 5-item World Health Organization Wellbeing Index (WHO-5) and the Patient Health Questionnaire-9 (PHQ-9). Multivariable regression was used to explore the effect of depressive symptoms on soap use and ability to pay for food/medicine/rent. RESULTS: Knowledge of COVID-19 symptoms, transmission and prevention was relatively high, however only 55% reported using soap for hand washing. Around one third perceived that prohibition of public gatherings had negatively impacted weekly earnings. Participants reported difficulty buying food (85%), medicine (82%) and paying rent (51%) because of COVID-19. The majority were assessed as having low wellbeing and high depressive symptoms (mean WHO-5 = 44.2/100; mean PHQ-9 = 18.6/27), with most (74%) indicating that they felt worse than before the pandemic. Compared to people with low depressive symptoms, people with high depressive symptoms were less likely to use soap (aOR = 0.3, 95% CI = 0.2, 0.7; P < 0.001) and more likely to report difficulty buying food (aOR = 2.2; 95% CI = 1.1, 4.3; P = 0.02). CONCLUSION: COVID-19 and associated restrictions have negatively impacted Somalia's internally displaced population. Livelihood and mental health support is urgently needed in the recovery phase of the pandemic and should be factored into future pandemic planning.

Death Anxiety, Loss, and Grief in the Time of COVID-19

According to TMT, when thoughts of death are conscious we engage in ‘proximal defences’, which include suppressing these thoughts (e.g. turning off a news report about COVID-19 death tolls), denying one's vulnerability (e.g. thinking "I'm not in a high risk group, so I'll probably be fine"), or trying to prevent death (e.g. cleaning down all home surfaces with antibacterial wipes). [...]as fear of the virus increased, mental health declined. [...]death-related losses arising from COVID-19 are compounded by non-death losses, such as global financial strain, massive unemployment, and financial hardship, all of which are also associated with impoverished mental health (Paul & Moser, 2006). In this form of life-vitiating, protracted, and anguishing response to loss, mourners struggle with turbulent emotions of longing, guilt, loneliness, and desolation which tangibly impair their ability to function in the contexts of family, work, and the social world for many months beyond the death, and not uncommonly, years. [...]ongoing ruminative preoccupation with the lost relationship or the circumstances of the death carries real health risks for a variety of stress-related disorders, cardiac problems, addictions, immune system dysfunction, impaired quality of life, and even suicide (Maercker, Neimeyer, & Simiola, 2016).

Death anxiety in the time of COVID-19: theoretical explanations and clinical implications.

The recent COVID-19 pandemic has triggered a surge in anxiety across the globe. Much of the public's behavioural and emotional response to the virus can be understood through the framework of terror management theory, which proposes that fear of death drives much of human behaviour. In the context of the current pandemic, death anxiety, a recently proposed transdiagnostic construct, appears especially relevant. Fear of death has recently been shown to predict not only anxiety related to COVID-19, but also to play a causal role in various mental health conditions. Given this, it is argued that treatment programmes in mental health may need to broaden their focus to directly target the dread of death. Notably, cognitive behavioural therapy (CBT) has been shown to produce significant reductions in death anxiety. As such, it is possible that complementing current treatments with specific CBT techniques addressing fears of death may ensure enhanced long-term symptom reduction. Further research is essential in order to examine whether treating death anxiety will indeed improve long-term outcomes, and prevent the emergence of future disorders in vulnerable populations. KEY LEARNING AIMS: (1)To understand terror management theory and its theoretical explanation of death anxiety in the context of COVID-19.(2)To understand the transdiagnostic role of death anxiety in mental health disorders.(3)To understand current treatment approaches for directly targeting death anxiety, and the importance of doing so to improve long-term treatment outcomes.

The power of national acoustic tracking networks to assess the impacts of human activity on marine organisms during the COVID-19 pandemic.

COVID-19 restrictions have led to an unprecedented global hiatus in anthropogenic activities, providing a unique opportunity to assess human impact on biological systems. Here, we describe how a national network of acoustic tracking receivers can be leveraged to assess the effects of human activity on animal movement and space use during such global disruptions. We outline variation in restrictions on human activity across Australian states and describe four mechanisms affecting human interactions with the marine environment: 1) reduction in economy and trade changing shipping traffic; 2) changes in export markets affecting commercial fisheries; 3) alterations in recreational activities; and 4) decline in tourism. We develop a roadmap for the analysis of acoustic tracking data across various scales using Australia's national Integrated Marine Observing System (IMOS) Animal Tracking Facility as a case study. We illustrate the benefit of sustained observing systems and monitoring programs by assessing how a 51-day break in white shark (Carcharodon carcharias) cage-diving tourism due to COVID-19 restrictions affected the behaviour and space use of two resident species. This cessation of tourism activities represents the longest break since cage-diving vessels started day trips in this area in 2007. Long-term monitoring of the local environment reveals that the activity space of yellowtail kingfish (Seriola lalandi) was reduced when cage-diving boats were absent compared to periods following standard tourism operations. However, white shark residency and movements were not affected. Our roadmap is globally applicable and will assist researchers in designing studies to assess how anthropogenic activities can impact animal movement and distributions during regional, short-term through to major, unexpected disruptions like the COVID-19 pandemic.

Impacts of the Covid-19 lockdown and relevant vulnerabilities on capability well-being, mental health and social support: an Austrian survey study.

BACKGROUND: Impacts of the Covid-19 pandemic and its public health measures go beyond physical and mental health and incorporate wider well-being impacts in terms of what people are free to do or be. We explored the impacts of the Covid-19 lockdown and relevant vulnerabilities on capability well-being, mental health and social support in Austria. METHODS: Adult Austrian residents (n = 560) provided responses to a cross-sectional online survey about their experiences during Covid-19 lockdown (15 March-15 April 2020). Instruments measuring capabilities (OxCAP-MH), depression and anxiety (HADS), social support (MSPSS) and mental well-being (WHO-5) were used in association with six pre-defined vulnerabilities using multivariable linear regression. RESULTS: 31% of the participants reported low mental well-being and only 30% of those with a history of mental health treatment received treatment during lockdown. Past mental health treatment had a significant negative effect across all outcome measures with an associated capability well-being score reduction of - 6.54 (95%CI, - 9.26, - 3.82). Direct Covid-19 experience and being 'at risk' due to age and/or physical health conditions were also associated with significant capability deprivations. When adjusted for vulnerabilities, significant capability reductions were observed in association with increased levels of depression (- 1.77) and anxiety (- 1.50), and significantly higher capability levels (+ 3.75) were associated with higher levels of social support. Compared to the cohort average, individual capability impacts varied between - 9% for those reporting past mental health treatment and + 5% for those reporting one score higher on the social support scale. CONCLUSIONS: Our study is the first to assess the capability limiting aspects of lockdown and relevant vulnerabilities alongside their impacts on mental health and social support. The negative capability well-being, mental health and social support impacts of the Covid-19 lockdown were strongest for people with a history of mental health treatment. Future public health policies concerning lockdowns should pay special attention to improve social support levels in order to increase public resilience.

Capability impacts of the Covid-19 lockdown in association with mental well-being, social connections and existing vulnerabilities: an Austrian survey study (preprint)

BackgroundImpacts of the Covid-19 pandemic and its public health measures go beyond physical and mental health and incorporate wider well-being impacts in terms of what people are free to do or be. We explored these capability impacts of the Covid-19 lockdown in association with peoples mental well-being, social support and existing vulnerabilities in Austria. MethodsAdult Austrian residents (n=560) provided responses to a cross-sectional online survey about their experiences during Covid-19 lockdown (15 March-15 April 2020). Instruments measuring capabilities (OxCAP-MH), depression and anxiety (HADS), social support (MSPSS) and mental well-being (WHO-5) were used in association with six pre-defined vulnerabilities using multivariable linear regression. Results31% of the participants reported low mental well-being and only 30% of those with a history of mental health treatment received treatment during lockdown. Past mental health treatment had a significant negative effect across all outcome measures with an associated capability well-being score reduction of -6.54 (95%CI: -9.26,-3.82). Direct Covid-19 experience and being at risk due to age and/or physical health conditions were also associated with significant capability deprivations. When adjusted for vulnerabilities, significant capability reductions were observed in association with increased levels of depression (-1.79) and anxiety (-1.50), and significantly higher capability levels (+3.77) were associated with higher levels of social support. Compared to the cohort average, individual capability impacts varied between -9% for those reporting past mental health treatment and +5% for those reporting one score higher on the social support scale. ConclusionsOur study is the first to assess the capability limiting aspects of a lockdown in association with specific vulnerabilities. The negative impacts of the Covid-19 lockdown were strongest for people with a history of mental health treatment. In future public health policies, special attention should be also paid to improving social support levels to increase public resilience.

Impact of the COVID-19 pandemic and initial period of lockdown on the mental health and well-being of adults in the UK.

The impact of the COVID-19 pandemic on mental health and well-being were assessed in a convenience sample of 600 UK adults, using a cross-sectional design. Recruited over 2 weeks during the initial phase of lockdown, participants completed an online survey that included COVID-19-related questions, the Hospital Anxiety and Depression Scale, the World Health Organization (Five) Well-Being Index and the Oxford Capabilities Questionnaire for Mental Health. Self-isolating before lockdown, increased feelings of isolation since lockdown and having COVID-19-related livelihood concerns were associated with poorer mental health, well-being and quality of life. Perceiving increased kindness, community connectedness and being an essential worker were associated with better mental health and well-being outcomes.

The impact of the COVID19 pandemic and initial period of lockdown on the mental health and wellbeing of UK adults (preprint)

Mental health and wellbeing impacts of COVID19 were assessed in a convenience sample of 600 UK adults using a cross-sectional design. Recruited over a two-week period during the initial phase of the government lockdown, participants completed an online survey that included COVID19-related questions, the Hospital Anxiety and Depression Scale, the WHO-5 and the OXCAP-MH. Self-isolating prior to lockdown, increased feelings of isolation since the lockdown, and having COVID19-related livelihood concerns, were associated with poorer mental health, wellbeing and quality of life. Perceiving increased kindness, community connectedness, and being an essential worker were associated with better mental health and wellbeing outcomes.